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#GivingTuesday

WHAT IS #GIVING TUESDAY?

Black Friday. Cyber Monday. #GivingTuesday!

We have a day for giving thanks. We have two for getting deals. Now, we have #GivingTuesday, a global day dedicated to giving back.

With generosity of heart, even a few dollars go a long way. Now that the holiday season is bursting onto us, we want to ask you to make a little room in your holiday budgets to celebrate what this season is really about: giving. Along with Black Friday and Cyber Monday, we are proud to bring you Giving Tuesday. Slated for Tuesday, December 2 this year, (the Tuesday after Thanksgiving) Giving Tuesday is a day to celebrate gifts small and large from ordinary people with extraordinary hearts who make donations from now, including Giving Tuesday till the end of the year. To find out how you can be counted, visit this page.

 

Carlsbad Marathon 2015

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Tri-City Medical Center Carlsbad Marathon

Join Team Lupus So Cal in the Tri-City Medical Center Carlsbad Marathon and get your friends and families involved, to help spread awareness in the community.  For more information, please CLICK HERE.

Sunday, January 18, 2015

Team Lupus So. CA raises awareness and funding for:
- Local patient services, including support groups, and patient education conferences, doctor referrals, health fairs.
- Research done through the Lupus Research Institute and other local research facilities in San Diego, for better treatments, and ultimately, a cure. aturday, November 15, 2014 at 10:30am

 

Free Support Groups

FREE Monthly Support Groups

Third Saturday of the Month at 10:30am

There will be NO support meeting in December

The next meeting will be on Saturday, January 17, 2015

Marie Callender’s – 6950 Alvarado Rd, San Diego, CA 92120

The Lupus Support Group meets monthly on the 3rd Saturday of the month to meet, talk, network, and share stories and information.

These are FREE and everyone is welcome – Lupus patients, family members, and friends.

{Click Here for More Info}

 

279 Patient Groups Applaud Proposed Changes to Essential Health Benefits

Coalition Endorses Additional Patient Protections and Urges Further Action against Discrimination

Washington, DC (December 19, 2014) – Today, the “I Am (Still) Essential” coalition of patient groups sent a letter signed by 279 organizations to Health and Human Services (HHS) Secretary Sylvia Mathews Burwell applauding the recently released Notice of Benefit and Payment Parameters for 2016 which, once finalized, define Essential Health Benefits (EHB) for Qualified Health Plans (QHPs) in the future under the Affordable Care Act (ACA). The letter detailed how the many positive changes in the proposed rule will improve the plans available to patients. The letter also suggests additional changes that will increase positive patient outcomes and urges the rule to be finalized without diminishing any of the proposed improvements.

“Despite its short tenure, the ACA has already increased patient access to care,” said Andrew Sperling, Director of Federal Legislative Advocacy at National Alliance on Mental Illness. “While it is not perfect, based on the proposed changes contained in the rule, we are optimistic the program will continue to evolve to serve patients better.”

The coalition, which is comprised of groups representing millions of patients throughout the country, has been working to shed light on discrimination and barriers-to-care that patients, specifically those with chronic conditions, have encountered under the plans offered within the Health Insurance Marketplace.

The latest notice from HHS directly addresses several access-to-care issues the coalition raised in a July letter to the department.  The patient groups applaud HHS for proposing new procedures that should result in plans covering more prescription medications to meet patient needs and avenues to access medications not covered by a plan through exceptions processes.  The proposed rule also increases transparency so that enrollees have access to more information regarding providers and prescription formularies.  The patient groups also support the HHS proposal that prohibits plans from delivering medications only through the mail.

“We are pleased that many of the concerns highlighted by the patient community are being recognized and addressed by Secretary Burwell,” said Angela Ostrom, Chief Operating Officer and Vice President of Public Policy at the Epilepsy Foundation. “We urge HHS to ensure all of these positive changes are incorporated into the final rule and to implement them in 2016 and not wait until 2017.  Patients should not wait another year for these modifications to occur; they need the ACA to work for them now.”

Despite ongoing improvements that are applauded by the group, the coalition urged further action from HHS on the matter of discrimination and high patient cost-sharing for medications. While the notice from HHS declares that placement of most or all drugs for a specific condition on the highest cost tier constitutes discrimination, the coalition urges HHS to begin to enforce this and address other discriminatory barriers to care such as high co-insurance. The letter from the coalition also requests further regulatory guidance on what constitutes discrimination in the marketplace.

“The changes proposed by HHS contained in the proposed rule should have an immense and positive impact on patients’ access to appropriate care,” said Carl Schmid, Deputy Executive Director of the AIDS Institute. “We encourage Secretary Burwell to implement these positive proposals in a final rule immediately and enforce the law to end discriminatory practices.”

Groups signing onto the letter include:  The AIDS Institute, American Autoimmune Related Diseases Association, Colon Cancer Alliance, Easter Seals, Epilepsy Foundation, Lupus Foundation of America, National Alliance on Mental Illness, National Kidney Foundation, National Multiple Sclerosis Society, and Parkinson’s Action Network.

The full text of the letter to HHS Secretary Burwell, along with the full list of signers, can be viewed here or go to: http://bit.ly/1JgdqhY.

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General Donation
Make a donation in any amount to help support education, research and advocacy. With a minimum donation of $35 you will become a member of the Foundation.

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In Honor
Shopping for someone that has everything, make a donation in their name and LFSC will send your special someone a card recognizing their special event.

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Volunteer Opportunities
There are many special ways to be a part of the Lupus Foundation. All of our volunteers are special and needed. If you would like to help.

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LFSC's 2011 Volunteer
Congratulations to Gerardo Becerra who received LFSC's 2011 Volunteer of the Year Award last night at CHAD's (Combined Health Agencies) Volunteer of the Year Award Ceremony at San Diego's Hall of Champions.

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Bracelet
Orange Bracelet: "LIFE WITHOUT LUPUS" $2.00

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T-shirt
Purple T-shirt with multicolored butterfly that says: “Someone you know has Lupus.” $20.00

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Membership

If you are interested in membership with the Lupus Foundation of Southern California, please fill out the attached application and e-mail it to This e-mail address is being protected from spambots. You need JavaScript enabled to view it This e-mail address is being protected from spambots. You need JavaScript enabled to view it. or fax to (858) 278-2782.

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Support Groups

The Lupus Foundation offers several support groups around San Diego County and we are working on opening new groups in more areas.

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Supporters

We are very proud to have served our sun concerned customers since 1997. Our goal is to offer you quality sun protection products with exceptional customer service and caring for your personal sun protection needs.

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